6 months ago I learned that I am a carrier of the cystic fibrosis gene Delta 508. I am probably the first person in history to not freak out about this, because I knew that even if Nathan was a carrier too that even IF Trace had CF there is a "cure" coming. I know this, because one of my best friends is also a carrier and her daughter actually has CF.
That day I thought Nathan would be a carrier. I thought that was why this friend was in my life. to prepare me for a child with CF. To set me up with a wonderful resource and support system. But he wasnt. So, I'm lucky enough that I only need to warn my kids when they decide to have kids one day. ( well, before then, but you get the point)
The day Bella was diagnosed I was at home packing up our house while Nathan took her to the ER. I was also on the phone with this friend who knows every little in and out of our childrens hospital, who also offered silent prayers and support ( because she knows I cant handle emotional stuff and LORD KNOWS that day I'd have lost my mind) but also lead me by example that although our kids fight different battles. the WAR is the same.
Daily fights to keep thier bodies as healthy os possible, to keep outside influences from complicating matters, just the right amount of food and meds at just the right time. avoiding germs and certain situations.
So... thats why. I have some wonderful friends, friends who go out of thier way to help, who THINK and avoid certain things that they know we cant have. but its a special thing to have someone who gets it. Even though I'm just starting to. wee fight different battles. but the war is the same.
Thank you for getting it, and helping me realize I'm still human yesterday... and making me feel human again. and I love my hair!:)
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